Patient and Caregiver Resources

Below is a list of additional resources that may assist you with your cancer journey. The sites listed here have been reviewed for accuracy and completeness.

Acinic Cell Carcinoma

Appendix Cancer

Bladder Cancer

Blood Cancer

Brain Cancer

Breast Cancer

Bosom Buddies of Arizona
11024 N. 28th Drive, Suite #200 Phoenix, Arizona 85029
Phone: (602) 265-2776
Hotline: (602) 231-6648

Bosom Buddies-AZ provides support, education and advocacy for those diagnosed with breast cancer. Educational resources available at no charge include: PRP Breast Cancer Guide, PRP Metastatic Breast Cancer, PRP Her2+ and ER/PR+ Personalized Therapy Guide, and Bosom Buddies-AZ Navigating Your Breast Cancer Journey-Maricopa County Resources.


FORCE: Facing Our Risk of Cancer Empowered

Mission:
To improve the lives of individuals and families affected by hereditary breast and ovarian cancer.

Description:
FORCE was founded on the principle that no one should have to face hereditary breast and ovarian cancer alone. We are the only national non-profit dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer.

Mothers Supporting Daughters with Breast Cancer (MSDBC)
25235 Fox Chase Drive, Chestertown, MD 21620
(410) 778-1982

Special Services:
A national non-profit organization providing support to mothers whose daughters have breast cancer. Free educational materials tailored to mothers and daughters about breast cancer treatment and constructive ways for mothers to provide support are included. Mothers are “matched” with mother volunteers across the country based on the daughter’s clinical profile, age at diagnosis and anticipated treatment.


Pink-Link

Mission Statement:
Pink-Link is a nonprofit organization which connects breast cancer survivors online. On our website, www.pink-link.org, women can connect with other women with similar breast cancer issues using the search capabilities of our innovative online database. It’s like a Match.com for breast cancer survivors! We currently have over 4,000 members in all 50 states and internationally.

In addition to our survivor database, our members can create a personal journal, to keep family and friends updated about their treatment and get help from our on-staff professionals regarding nutrition, exercise, skin care, alternative medicine and lymphedema (a condition associated with breast cancer). Our members can connect with each other through our member forum as well. Privacy and confidentiality are our number one concern.

All services provided on our website are completely free. We rely on the generosity of individual donors and corporations to fund our organization.

Cancer Education

PearlPoint Cancer Support
310 25th Ave N, Suite 103, Nashville, TN 37203
(615) 467-1936 or (877) 467-1936 (toll-free)

Our Mission: To create a more confident cancer journey for adults anytime, anywhere

PearlPoint provides personalized guidance and compassionate support to any adult impacted by cancer, from the moment of diagnosis. Services, which complement medical care, are FREE of charge regardless of location and include: My PearlPoint, an innovative tool to track personalized information; an online Cancer Library with medically trusted articles, videos, and other resources on cancer and its treatment; clinical trial education and an easy-to-use clinical trial locator; nutrition consultations with registered dietitians; and one-on-one guidance from our supportive services professionals.

Union for International Cancer Control

By signing the World Cancer Declaration you join a worldwide community that is calling on key decision makers to reduce the global cancer burden. Our goal is to gather 1,000,000 supporters for a Cancer Free World - we will present this support to the world’s leaders at the first UN Summit for Non Communicable Diseases (NCD's) in September 2011.

There has only been one UN General Assembly Special Session, focused on health since 1945; the announcement of next year's Special Summit on NCDs is an unprecedented step in the battle against cancer and represents an opportunity for our generation to eliminate cancer as a life-threatening disease for future generations.

Together we are stronger! Help us reduce the global cancer burden, join our campaign today!

Carcinoid

Caregivers & Support

4th Angel Patient & Caregiver Mentoring Program
(866) 520-3197

The 4th Angel Mentoring Program is a survivorship program launched by The Scott Hamilton CARES Initiative that provides free and confidential telephone or e-mail support to cancer patients and their caregivers. Trained mentors, who are cancer survivors themselves or have been a caregiver to a cancer patient, offer guidance and support. The program ensures that participants are paired (matched) based on similar characteristics including gender, age, cancer diagnosis, and treatment type. Opportunities are also available for cancer survivors and their caregivers to volunteer as mentors. Please visit 4thangel.org or call 866-520-3197

Resource page: www.4thangel.org/Resources.aspx

 

  • Bloch Cancer Hotline: 800-433-0464
CanCare
(888) 461-0028

CanCare connects patients and their loved ones to someone who has experienced the same or similar type of cancer. Support is provided by cancer survivors and caregivers who have dedicated themselves to using personal experience to provide hope, support, guidance and resources to others. They know the challenges of fighting cancer and strive to help others who are diagnosed. Service is free of charge and for all cancer types. CanCare is a nonprofit organization that has been supporting people with cancer for more than 25 years.

“Support from a CanCare volunteer is beneficial because it ‘shortens the learning curve’ in so many ways, which reduces a huge amount of stress for the patient and their family.” - Jacquelyn M. Carrier, CanCare volunteer and stage 3b melanoma survivor

Friend for Life Cancer Support Network
4007 Kresge Way, Louisville, Kentucky 40207
(502) 893-0643

Mission:
To help persons recently diagnosed with cancer and their loved ones navigate the path through diagnosis, treatment and recovery by pairing them with a trained survivor of a similar experience so they can face cancer with someone who's been there.

Patient Tools:

-Persons diagnosed with cancer and caregivers receive one on one support by phone/e-mail by a trained peer navigator who has survived the same type of cancer and similar course of treatment.

-Speakers’ bureau for meetings in Louisville, KY area

-Refer to other cancer resources when necessary

The Hope Light Foundation
908 Hazelvalley Drive, Hazelwood, MO 63042
(314) 838-4959

Mission/Strategy:
The Hope Light Foundation (HLF) is a nonprofit, public charity organization dedicated to communicating all-cancers awareness information to enable people to detect, diagnose and treat cancer early while in the organ of origin to enhance survivorship and save lives. The HLF uses evidence-based criteria to target high risk for cancer death communities and establish needs-based interventions.


MyLifeLine.org Cancer Foundation
1355 South Colorado Blvd Building C-601, Denver CO 80222
(720) 883-8715

MyLifeLine.org encourages cancer patients and caregivers to create free, customized websites. Our mission is to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing. The personal websites allow the patient to communicate easily and receive the help they need during and beyond cancer treatment.

Patient Tools: See an example of a personal website http://www.mylifeline.org/testsite/
Connecting Updates- Blog about your experience
Inspiring Messages- Receive messages from friends and family
Helping Calendar- Post help needed with meals, rides, visiting hours, etc.
Giving Angels- Create a financial assistance page
Learning Link – Educate your support network on your cancer
Laughing Medicine- Funny jokes and books to lighten the mood
Photo Gallery- Post pictures

PearlPoint Cancer Support
310 25th Ave N, Suite 103, Nashville, TN 37203
(615) 467-1936 or (877) 467-1936 (toll-free)

Our Mission: To create a more confident cancer journey for adults anytime, anywhere

PearlPoint provides personalized guidance and compassionate support to any adult impacted by cancer, from the moment of diagnosis. Services, which complement medical care, are FREE of charge regardless of location and include: My PearlPoint, an innovative tool to track personalized information; an online Cancer Library with medically trusted articles, videos, and other resources on cancer and its treatment; clinical trial education and an easy-to-use clinical trial locator; nutrition consultations with registered dietitians; and one-on-one guidance from our supportive services professionals.

Cervical Cancer

Chemotherapy

Childhood Cancer

Clinical Trials

PearlPoint Cancer Support
310 25th Ave N, Suite 103, Nashville, TN 37203
(615) 467-1936 or (877) 467-1936 (toll-free)

Our Mission: To create a more confident cancer journey for adults anytime, anywhere

PearlPoint provides personalized guidance and compassionate support to any adult impacted by cancer, from the moment of diagnosis. Services, which complement medical care, are FREE of charge regardless of location and include: My PearlPoint, an innovative tool to track personalized information; an online Cancer Library with medically trusted articles, videos, and other resources on cancer and its treatment; clinical trial education and an easy-to-use clinical trial locator; nutrition consultations with registered dietitians; and one-on-one guidance from our supportive services professionals.

Colorectal Cancer

Communication Support


CaringBridge
1715 Yankee Doodle Road, Suite 301
Eagan, MN 55121
651.452.7940 :: main
651.789.2300 :: customer care

If you or someone you know is in a cancer journey, use CaringBridge to easily communicate and stay connected.

CaringBridge provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier. CaringBridge websites offer a personal and private space to communicate and show support, saving time and energy when health matters most.

Each site includes a place to post health updates and photos as well as a guestbook for visitors to leave messages of support. A personal CaringBridge website brings family and friends together online, surrounding a patient and their caregiver with love, hope and compassion. Learn more at www.CaringBridge.org.

Complementary Programs & Alternative Medicine

Touch, Caring and Cancer
3986 N Shasta Loop
Eugene, OR 97405
541.632.3502

One of the most comforting forms of support you can offer a loved one with cancer is the use of touch.

Developed with support from the National Cancer Institute, The Touch, Caring and Cancer program provides inspiring and authoritative video instruction in safe and simple techniques that anyone can learn and apply. Available in English, Spanish and Chinese versions. Learn more at www.partnersinhealing.net.

 

Directories to Resources

Drug Research Updates

Early Detection 

Elderly

Esophageal Cancer

Ethnic & Religious

Fertility & Cancer

Financial Assistance

Gastrointestinal Cancer

Gynecologic Cancer

Head & Neck Cancer

Hospice & Home Care

Immunotherapy

Kidney Cancer

Laryngeal Cancer

Leukemia & Lymphoma

Cutaneous Lymphoma Foundation
PO Box 374, Birmingham, MI 48012-0374
(248) 644-9014

The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting every person with cutaneous lymphoma by promoting awareness and education, advancing patient care and facilitating research.

We invite you to support our important work by designating donations you make to the Combined Federal Campaign (CFC #12294) and the United Way (UW #042972) to the Cutaneous Lymphoma Foundation. Thank you in advance for your support! For more information on the many ways you can become involved and support our life-changing mission, please visit http://www.clfoundation.org/.

Leukemia & Lymphoma Society
1311 Mamaroneck Avenue, Suite 310, White Plains, New York 10605
Information Resource Center (IRC): (800) 955-4572

The Leukemia & Lymphoma Society (LLS) is the world’s largest voluntary health organization dedicated to funding leukemia, lymphoma and myeloma research and providing patient education and financial and support services. LLS has free patient education and support booklets in English and Spanish. Contact our master's level Information Specialists for up-to-date information and support, Monday through Friday, 9 a.m. to 6 p.m. ET at (800) 955-4572 or email infocenter@LLS.org. Information Specialists help patients work with their doctors to find out about specific clinical trials. You can also use TrialCheck®, an online clinical trial search service supported by LLS that offers patients and caregivers immediate access to listings of blood cancer clinical trials.

The National CML Society
130 Inverness Plaza #307, Birmingham, Alabama 35242
(877) 431-2573

The National CML Society (NCMLS) is a non-profit organization created by Chronic Myelogenous Leukemia (CML) patients and caregivers in the United States - people just like you who have experienced the news of a CML diagnosis. Through our initiatives, we provide opportunities to learn about CML, participate in ground-based support communities (CML Connection™), interface with leading CML specialists (Ask the CML Experts™), foster research, and celebrate life!

Our Ask the CML Experts™ Portal allows patients, caregivers, and medical professionals to submit their unique questions and have them reviewed by the nation's leading specialists treating CML.

Let us help you get your bearings and chart a course for the future.

 

Patients Against Lymphoma
3774 Buckwampum Road, Reigelsville, PA 18077
(610) 346-8419

We provide online support forums (including on Facebook), and a comprehensive resource on lymphoma: www.Lymphomation.org. Our content is determined by patient questions. Our research objective is make consideration of clinical trials routine, in order to accelerate progress against lymphomas.

Liver Cancer

The Cholangiocarcinoma Foundation
5526 West 13400 South, #510, Salt Lake City, UT 84096
(801) 999-0455

The Cholangiocarcinoma Foundation is a nonprofit leading the way in collaboration, understanding, research and education within the bile duct cancer community. We exist to find a cure and improve the quality of life for those affected cholangiocarcinoma. Visit our web site, www.cholangiocarcinoma.org, to find help for newly diagnosed patients, major cancer centers treating cholangiocarcinoma, patient support including forums connecting patients and caregivers to one another and more.

Every hour that has gone into The Cholangiocarcinoma Foundation has been volunteered. We are working to support research to find a cure. We invite you to support our important work through donations to: The Cholangiocarcinoma Foundation. Thank you in advance for your support!

Lung Cancer

Caring Ambassadors Lung Cancer Program
P.O.Box 1748
Oregon City, Oregon 97045
(503) 632-9032

Mission:
The Caring Ambassadors Lung Cancer Program, mission is to help improve the lives of those affected by lung cancer through advocacy, information, and support. We hope to provide this information so that patients and their loved ones can make informed decisions about their lung cancer treatment options and supportive care.

Lymphedema

Melanoma & Other Skin Cancers

Mental Health Services

  • American Psychosocial Oncology Society Helpline: 866-276-7443

Multiple Myeloma

Myelodysplastic & Aplastic

The Myelodysplastic Syndromes Foundation, Inc.
4573 South Broad St., Ste. 150, Yardville, NJ 08620
(800) MDS (637)-0839

Special Services:
The MDS Foundation is an international organization devoted to patient support, research, treatment, and education in the myelodysplastic syndromes (MDS). The Foundation is based on the premise that international cooperation will accelerate the process leading to the control and cure of MDS. The Foundation, through our current network of 152 Centers of Excellence worldwide, provides referrals for patients, disseminates information on research and treatments, provides educational programs for patients, caregivers, physicians, nurses and health care providers, and supplies funding/oversight for international studies in MDS.

Nutrition

Oral Cancer

Ovarian Cancer

Familial Ovarian Cancer Registry
Roswell Park Cancer Institute, Elm and Carlton Streets, Buffalo, NY 14263
(800) 682-7426

Mission Statement:
The Familial Ovarian Cancer Registry research goals are to identify new genes associated with familial ovarian cancer, to improve genetic and psychosocial counseling about lifestyle choices that reduce ovarian cancer risk in women who may be more susceptible to the disease. The registry is acquiring information that will lead to better methods for detecting ovarian cancer and for reliable testing for ovarian cancer predisposition.

Description:
We are an international registry of families with two or more relatives with ovarian cancer. We are collecting family histories, medical records and biological samples from these families. The registry offers a newsletter, ovarian cancer informational brochures and an ovarian cancer informational hotline for women with high risk of ovarian cancer – 1-800-OVARIAN.

Pain Management

Pancreatic Cancer

Hirshberg Foundation for Pancreatic Cancer Research
2990 S. Sepulveda Blvd., Suite 300C, Los Angeles, CA 90064
(310) 473-5121

Founded in 1997, the Hirshberg Foundation for Pancreatic Cancer Research is a national, nonprofit organization dedicated to advancing pancreatic cancer research, and providing information, resources and support to pancreatic cancer patients and their families.

 

Lustgarten Foundation
Toll free: (866) 789-1000

The nation’s largest private supporter of pancreatic cancer research, The Lustgarten Foundation is dedicated to advancing the science and providing patients, caregivers and health care professionals with free, accurate information. Thanks to Cablevision Systems Corporation’s commitment to underwrite all of The Foundation’s administrative expenses, 100% of every dollar donated goes directly to pancreatic cancer research.

Patient Tools

Recognizing the unique challenges faced by individuals with pancreatic cancer, The Lustgarten Foundation provides comprehensive education materials free by request. Bulk orders are also available at no cost to health care professionals. Materials include:

  • Understanding Pancreatic Cancer: A Guide for Patients and Caregivers (Link: www.lustgarten.org/patienthandbook
  • Clinical Trial Matching Service (Link: www.lustgarten.org/clinicaltrials) in partnership with EmergingMed
  • Interview With An Expert (Link: www.lustgarten.org/expertinterviews) patient information series

Patient Advocacy

Pediatric Brain Cancer

Prostate Cancer

Prostate Cancer Networking Group
2007 W. 86th Street
Leawood, KS 66206
913.485.1892

Men who have, or have had, prostate cancer give valuable support to others through their involvement with the Prostate Cancer Networking Group. Just as men have received support from this group, they can in turn offer other patients and their families patience, strength, and endurance through their experiences with diagnosis, treatment and recovery.

Radiation Oncology

Rare Cancers

Research

Sarcoma

Sarcoma Alliance
775 East Blithedale, #334, Mill Valley, CA 94941
(451) 381-7236

The Sarcoma Alliance provides guidance, education and support to everyone affected by all types of sarcoma. We have a website providing diagnosis and treatment information including links to other sarcoma organizations. We have a bulletin board, a chat room, a peer to peer program and provide grants for getting second opinions.

Key Web Address:
Following are links to our key programs. Our Discussion Board (http://sarcomaalliance.org/discussion-board/) has a number of forums for people with different interests or questions. We have a moderated Chat (http://sarcomaalliance.org/chatroom/) on Wednesday and Sunday. Finally, we have a Peer to Peer Program (http://sarcomaalliance.org/peer-to-peer/) and provide financial grants for second opinions (http://sarcomaalliance.org/financial-assistance/).

Skin Cancer

Stomach Cancer

Stopping Tobacco Use

Testicular Cancer

Thyroid Cancer

ThyCa: Thyroid Cancer Survivors' Association, Inc.

Description:
ThyCa: Thyroid Cancer Survivors' Association, Inc., a national nonprofit 501 (c) (3) organization advised by thyroid cancer specialists, educates and supports patients and families through its web site, support groups, person-to-person support, free patient information packets, free newsletters, free Low-Iodine Cookbook, workshops, and conferences. ThyCa sponsors Thyroid Cancer Awareness Month, plus thyroid cancer research fundraising and research grants. E- mail thyca@thyca.org, phone (877) 588-7904, fax (630) 604-6078, write ThyCa, PO Box 1545, New York, NY 10159-1545, Web site: www.thyca.org

Free Online Tools from ThyCa:

Free Low-Iodine Cookbook
English: www.thyca.org/Cookbook.pdf
Spanish: www.thyca.org/CookbookEsp.pdf

Free Newsletter: www.thyca.org/guestbook.htm

Information for People Newly Diagnosed with Thyroid Cancer: www.thyca.org/newly_diagnosed.htm

Free Patient Information Packet: www.thyca.org/support/guestbook

Awareness Materials: www.thyca.org/awareness.htm

Free Publications: www.thyca.org/downloads.htm

Veterans' Assistance

Women’s Health

Young Adults


Stupid Cancer

 

Founded in 2007 by young adult survivors and for young adult survivors, the I'm Too Young For This! Cancer Foundation is the nation's leading grassroots advocate for the next generation of cancer survivors and their caregivers in their late teens, 20s and 30s. A TIME Magazine Best 50 Website for 2007, we have helped bring the cause of 'cancer under 40' to the national spotlight and rallied a brand new generation of activists to ensure prompt detection, advocacy, research and support for this forgotten population.

 

More Information

 



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