Parents may get additional information about childhood cancers and find many types of support from these sources:
- 100 Questions & Answers About Your Child’s Cancer, by William M. Carroll, MD and Jessica Reisman, CSW
- American Brain Tumor Association provides information about childhood brain tumors and their causes, symptoms, and treatments in easy-to-read language.
- American Cancer Society has a detailed guide to the causes, early detection, risk factors, prevention, diagnosis, and treatment of cancer in children.
- American Childhood Cancer Organization provides information for children and adolescents and their families and supports research to help children survive cancer.
- American Society of Clinical Oncology has a patient-oriented Web site that contains comprehensive information about specific types of childhood cancers.
- Children’s Brain Tumor Foundation offers a free publication A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors.
- Children’s Cause for Cancer Advocacy works to stimulate drug discovery and development for childhood cancers. It offers information about finding clinical trials and a variety of educational resources.
- CureSearch: National Childhood Cancer Foundation and Children’s Oncology Group provides information for newly diagnosed cancer patients and their families about treatments, side effects, and ways to lead a healthy life after treatment.
- Kids v Cancer adovcate for children's inclusion into clinical trials, assist families with autopsy brain tissue donations and run a Compassionate User Navigator program helping families apply for investigational drugs.
- National Brain Tumor Society offers families information on types, treatments, and treatment centers as well as resources for support and finances.
- National Cancer Institute provides extensive descriptions of a wide variety of childhood cancers and their treatment, along with information about the causes, genetics, and prevention of cancers in children.
- National Children’s Cancer Society is dedicated to improving the quality of life for children with cancer and their families by providing financial and in-kind assistance, advocacy, online support services, and education through free publications.
- Leukemia and Lymphoma Society provides information about these diseases and other blood cancers in addition to services to help patients and their families find financial support and get online support through family support groups.
- Leukemia Research Foundation provides patient-oriented information about leukemia and lymphoma, clinical trials being conducted to treat these diseases, and resources for emotional support and financial assistance.
- Make-A-Wish Foundation gives hope, strength, and joy to children with life-threatening medical conditions through its wish-granting work.
- Stupid Cancer creates shared experiences for young adults by producing life-changing live events and digital content that end isoloation, builds communities, provides education and fosters meaningful relationships that last a lifetime.
For additional resources and advocacy groups, click here.
For organizations that offer financial assistance to people affected by cancer or that provide links to other organizations that may provide such help, click here.